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Thinking about the future

Progression and Long-Term Care Planning

As someone you care about ages and their condition progresses, they will likely think more about the future and their goals. It is important to discuss their priorities with healthcare clinician(s), care partner(s), and others in their life, as part of long-term planning for their care. Because brain health changes can affect their ability to make decisions, including those about finances and healthcare, these discussions should occur while they’re still able to weigh in.

As their condition progresses, what’s next?

  • Continue regular care: It is important that they continue to see their PCP and specialists for brain health. This keeps everyone — the person you care for, you, and their clinicians — updated on their condition, so you can make informed decisions as a care team.
  • Keep their care plan updated: Document any changes to their treatment, clinicians, or preferences for living arrangements and longer-term care. The National Institute on Aging offers guidance on advance directives and advance care planning.
  • Consider working with an elder lawyer: An elder lawyer can help put a plan in place that reflects their goals while gathering the necessary legal documents, such as advance directives, power of attorney, wills, and medical orders, to help ensure their wishes are honored. The Alzheimer's Association has more information about important legal paperwork and more.

Bottom line: As the person you’re caring for ages and their condition progresses, help them continue their regular care, keep their care plan updated as preferences and needs change, and consider working with an elder lawyer to put the right legal documents in place so their wishes can be honored.

How will their condition progress?
What are possible living arrangements and care options as their condition progresses?
The information provided on this website is for general informational and educational purposes only and is not intended to constitute medical advice, diagnosis, or treatment. It should not be relied upon as a substitute for professional medical judgment. Consult a qualified healthcare provider with any questions you may have regarding Alzheimer's disease, related conditions, or any medical condition.
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