Patient Pathway - Resources to Navigate Changes in Brain Health
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Patient Pathway

Resources to Navigate Changes in Brain Health

Couple discussing early signs of dementia.
Couple discussing early signs of dementia.

These resources can help if you're experiencing memory or thinking changes, caring for someone with these changes, or know someone who may have them

For individuals and caregivers: This framework will help you take charge of your care, improve your quality of life, and get the best outcomes

For healthcare providers: This framework helps you detect and diagnose Alzheimer's disease early. It guides patients from concern to accurate diagnosis as quickly as possible

These resources can help if you're experiencing memory or thinking changes, caring for someone with these changes, or know someone who may have them

For individuals and caregivers: This framework will help you take charge of your care, improve your quality of life, and get the best outcomes

For healthcare providers: This framework helps you detect and diagnose Alzheimer's disease early. It guides patients from concern to accurate diagnosis as quickly as possible

Couple discussing early signs of dementia.
For Individuals, Care Partners, and Providers

Pathway to Manage Changes in Brain Health

This tool provides an overview of four key stages for someone experiencing changes in memory and thinking. For each stage, you'll learn what to expect and what happens at doctor visits.
Detailed Pathway for Individuals and Care Partners

Pathway for People with Cognitive Issues

This resource gives detailed information about memory and thinking changes. It's for people with memory concerns and for friends and family. You'll find answers to common questions and helpful resources.
Coming Soon
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For Healthcare Providers

Framework for Early Detection and Diagnosis of Alzheimer’s Disease

This tool helps primary care and specialty care teams work together. It provides step-by-step workflows, clear roles for each team member, and ways to coordinate care. This tool is for primary care teams (doctors, nurse practitioners, physician assistants, social workers, and nurses) and specialists.

Coming Soon

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Informed by Expertise and Lived Experience

Couple discussing early signs of dementia.
UsAgainstAlzheimer's created these resources with help from two advisory groups. The groups shared feedback through monthly meetings, one-on-one talks, email, and document reviews. The advisory groups included healthcare professionals, people with personal experience with memory changes, and caregivers for people experiencing memory changes. Their input shaped these tools. The advisory groups included:

  • Lived experience advisory group: People living with mild cognitive impairment due to Alzheimer’s disease, people living with increased risk of Alzheimer’s disease (APOE e4 carriers), current and former caregivers to family members with Alzheimer’s disease, licensed clinical social workers, etc.

  • Expert advisory group: dementia experts, general neurologists, primary care providers, specialists, researchers, licensed clinical social workers, and nurses.

Couple discussing early signs of dementia.

UsAgainstAlzheimer’s is a nonprofit patient advocacy organization which aims to catalyze change in the health ecosystem to improve dementia prevention, early detection, and access to treatments through advocacy, policy, convening, and high-leveraged programs, with a particular focus on health equity. This project was made possible thanks to funding from sponsors Novo Nordisk and Bristol Myers Squibb.